![Two-year-old with rare skin disease dies in his mother's arms; Struggle inspired thousands through online updates - New York Daily News Two-year-old with rare skin disease dies in his mother's arms; Struggle inspired thousands through online updates - New York Daily News](https://www.nydailynews.com/resizer/67s70vwRSH4ukIBI2KFXIeIHE3Y=/415x276/top/arc-anglerfish-arc2-prod-tronc.s3.amazonaws.com/public/YURXS4I7F4LFMVB4OE6L62OS3Q.jpg)
Two-year-old with rare skin disease dies in his mother's arms; Struggle inspired thousands through online updates - New York Daily News
![Mother was accused of BURNING her sons after a rare condition left them with 'butterfly skin' | Daily Mail Online Mother was accused of BURNING her sons after a rare condition left them with 'butterfly skin' | Daily Mail Online](https://i.dailymail.co.uk/1s/2019/06/10/10/14594558-0-image-a-31_1560160345506.jpg)
Mother was accused of BURNING her sons after a rare condition left them with 'butterfly skin' | Daily Mail Online
![My brother came to me in a dream last night and told me he was in heaven. He isn't in pain anymore.': Mom of 2 children with rare skin condition loses youngest My brother came to me in a dream last night and told me he was in heaven. He isn't in pain anymore.': Mom of 2 children with rare skin condition loses youngest](https://lwm-a2.azureedge.net/uploads/2020/05/melissa_jaquez_feature2-1600x900.jpg)