There are days she's screaming so much we're all in tears' - parents of 'butterfly skin' children appeal to Dáil for help
![My dear friend Liz (RIP). She suffered from a rare skin disease called epidermolysis bullosa (EB). | Epidermolysis bullosa, Skin disorders, Skin diseases My dear friend Liz (RIP). She suffered from a rare skin disease called epidermolysis bullosa (EB). | Epidermolysis bullosa, Skin disorders, Skin diseases](https://i.pinimg.com/originals/f5/46/46/f54646645cc22e83564cafef8f88d5ce.jpg)
My dear friend Liz (RIP). She suffered from a rare skin disease called epidermolysis bullosa (EB). | Epidermolysis bullosa, Skin disorders, Skin diseases
![I've been left in agony with my 'butterfly skin' condition because people have stockpiled paracetamol' | Marie Claire I've been left in agony with my 'butterfly skin' condition because people have stockpiled paracetamol' | Marie Claire](https://img.ti-media.net/wp/uploads/sites/46/2019/12/Myra-Ali-EB.jpg)
I've been left in agony with my 'butterfly skin' condition because people have stockpiled paracetamol' | Marie Claire
![Mother was accused of BURNING her sons after a rare condition left them with 'butterfly skin' | Daily Mail Online Mother was accused of BURNING her sons after a rare condition left them with 'butterfly skin' | Daily Mail Online](https://i.dailymail.co.uk/1s/2019/06/10/10/14594558-0-image-a-31_1560160345506.jpg)
Mother was accused of BURNING her sons after a rare condition left them with 'butterfly skin' | Daily Mail Online
![His skin is as fragile as the wings of a butterfly': Mom's heartbreaking account of son's rare skin condition – Love What Matters His skin is as fragile as the wings of a butterfly': Mom's heartbreaking account of son's rare skin condition – Love What Matters](https://lwm-a2.azureedge.net/uploads/2018/04/rare_skin_condition-860x645.jpg)
His skin is as fragile as the wings of a butterfly': Mom's heartbreaking account of son's rare skin condition – Love What Matters
![Mum whose baby died from rare form of butterfly skin disease urges women to run for the cause - Irish Mirror Online Mum whose baby died from rare form of butterfly skin disease urges women to run for the cause - Irish Mirror Online](https://i2-prod.irishmirror.ie/news/irish-news/article10176378.ece/ALTERNATES/s615/lola-butterfly-skin-disease.jpg)
Mum whose baby died from rare form of butterfly skin disease urges women to run for the cause - Irish Mirror Online
![Boy born with rare 'Butterfly disease' that leaves him with no skin refuses surgery because he's scared of dying on the operating table Boy born with rare 'Butterfly disease' that leaves him with no skin refuses surgery because he's scared of dying on the operating table](https://www.thesun.co.uk/wp-content/uploads/2018/01/nintchdbpict000381479107.jpg)